Tuesday, March 13, 2012

Love, Molly!

Hi Everyone! Mommy has been slacking with the updates so I figured I'd update everyone on how I've been doing. There really isn't a whole lot to report. I ended up getting a surprise RSV vaccine. My pediatrician was able to get a 6th dose approved this year. That didn't make me very happy. It also didn't make me happy that I had to wait for 45 minutes for the doctor to come in to give it to me. But now it's definitely over for this year. They are going to try to get it approved next year but generally insurance doesn't approve over the age of 2 but with kids like me they will some times approve it for a 3rd year. We'll see. As much as I hate getting that vaccine, I'm pretty sure I would hate having RSV even more. So I will be a big girl and get the shot as many times as I need to.

I've been torturing mommy & daddy a little bit at night. I kind of like to wake up in the middle of the night, screaming and crying, until mommy comes in and rocks me to sleep in the glider. I finally fall back to sleep only to wake up when she puts me back to bed. Sometimes I'm up for a few minutes and other times it's a few hours. It all depends on what I feel like doing at the time. They have been racking their brains trying to figure out why I'm doing this. It used to be my belly. If I didn't poop that day I would wake up with a belly ache. But we had cut back on some of my formula so that I would become more thirsty forcing me to drink more which was kind of making it hard for me to poop so mommy & daddy started me on a very small dose of Miralax. I get less than 1 teaspoon every other day and so far it's doing the trick. So they can cross that off the list. I'm not napping too long because mommy wakes me up after 2 hours no matter what. Cross that off of the list. They don't let me watch TV before bed so it's not that. They have tried switching the music that they play for me, they even moved the furniture around in my bedroom, they sucked the boogies out of my nose, run the humidifier, don't run the humidifier, put Vicks with lavender on my chest which is supposed to make me sleepy, didn't give me a nap during the day, shut the lights off, keep the lights on, different night lights. They have literally tried everything. Daddy has been sleeping downstairs because I have been keeping him up at night and he can't function at work the next day. The 2 nights that he slept downstairs are the 2 nights that I slept through the night. They will never figure me out. Never have been able to and probably never will. I even learned that if I kick my crib hard enough, the Minnie Mouse and Goofy dolls that are on my crib will fall off and I can play with them when I should be sleeping. Kind of like now. It's 9:30pm and I should be asleep but instead I'm playing with anything I can find in my crib, forcing mommy to come upstairs and take everything out of my crib except for me and my 2 blankets.

I have been loving music therapy. The lady that comes to see me is very nice. She plays the guitar and sings to me and I play along with her ukulele. It's so much fun. It really motivates me to stand up and work on the things they are asking me to work on. I also really like to play the keyboard and bang on the drum. We have been working on strengthening my hips. My standing is so much better and you can tell that my hard work is paying off. When I stand up I'm so happy and so proud of myself. You can tell by the smile on my face. Of course, it helps that mommy and daddy cheer for me every time I do it. I can stand up while holding on to something. I can go from sit to stand using just my leg strength. Early Intervention is so impressed with my progress. I still have a long way to go and I'm going to need help once Early Intervention ends when I'm 3 but I'll catch up to where I'm supposed to be at some point and my parents won't know what to do with their free time once that time comes.

The other day mommy was feeding me dinner and she had one of my baby cookies in her hand. I took the cookie, put it in my mouth and bit a piece off, chewed it and swallowed it. I think I gave her and daddy a heart attack. Never did they expect me to do that. But I didn't want them to get too excited so I haven't done it again since. I've been drinking from a juice box with the hopes that I'll learn to drink from a straw. I take the juice in and swallow it because mommy can squeeze the box but I haven't learned to drink from the straw yet.

I've started saying "ma ma" and "da da". It's more like "ma ma ma ma ma" and "da da da da da" but it's a start and everyone is very happy with that. I'm making all kinds of sounds now and I really really love to torture my dogs. Nova isn't as fun because he doesn't give me a reaction when I push him, pinch him or pull his tail. He just walks away. He really only wants to be my friend when I'm eating anyway. But Lulu always barks at me when I touch her and that makes me laugh so hard. Mommy says she feels like I do something new every day and that makes mommy and daddy so happy. Forward progress. It's all about forward progress.

My birthday plans are in full swing. The date is set and the theme has been chosen. We went back and forth between Strawberry Shortcake and Care Bears. In the end it was Strawberry Shortcake (I think it's because that was mommy's favorite growing up). I do love Strawberry Shortcake but Mickey Mouse will always be #1 to me. Mommy thought she was going to make all of the decorations for the party but what she didn't take into consideration was that I wasn't going to allow her any spare time for that. Between taking care of me, working, doctors appointments and everything else...she would be out of her mind to think she was going to be able to do that. So she decided she will make a few things, instead of everything. It's just a great distraction from my upcoming hospital stays.

Daddy has also been pretty busy this past month. He has been studying for some test for work. He studied every night when he came home from work, went to class every Tuesday night after work and he finally took the test this past Friday. He is the smartest guy I know and I'm sure he did great. Hopefully he'll find out how he did within the next week or so.

I think that's about all for now. My next doctors appointment is Endocrine on the 29th (stupid appointment) then I have my preop on April 2nd and surgery on the 4th. Hopefully I'll get to update again before then. If not, mommy will definitely update after my surgery and let everyone know how I'm doing.

Happy St. Patrick's Day!

Love,
Molly :)




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