Growth & Nutrition

I had a very long day today. I don't like days like today. We left the house at 11am because I had an appointment at Children's for Growth and Nutrition. I dread this appointment every time because it's so long. I see three different people...one is to help mommy with some feeding tips, another one is a nutritionist and the other one is a doctor but I don't know why I see him. He doesn't do anything. I think he just wants to waste our time.

We got to Children's at noon. Mommy didn't feed me because she knew they would want to see me eat so she held off. Not only was I starting to get hungry but I was starting to get sleepy and those 2 things are never a good combination. Then I had to get weighed and we all know how much I love that. I am 8.98 kg (19 lb 12 oz). The nutritionist was understanding and said that it's going to take some time for my body to catch up to the way it was before I got sick. This is exactly why mommy & daddy try so hard to prevent me from getting sick. I'm not like every other baby. It effects me differently and takes me so much longer to recover. We are taking a step back from my feeding. We were trying some solid foods...disolvable puffs, muffins, etc. Now we are going back to things that I can chew on but not bite off. The feeding therapist thinks I may have taken a bite of something and broke it off and it may have scared me just enough so that I don't want to eat solid foods. So now we are doing our oral feedings 3 times a day. We are going to try 2 jars of baby food with each feeding as well as my g tube feeds 4 times a day. Instead of the rice cereal we are going to try oatmeal since the rice didn't agree with me. I have a lot of stuff to work on and it's pretty overwhelming for mommy. She is try to work on my walking/standing, talking/speech therapy, feeding/drinking plus all of my doctors appointments and everything else. My appointment today ended up being three hours which is way too long to occupy any kid in a doctors office. Needless to say we didn't get home until 5pm. I had a half hour nap, not much feeding and a belly ache. But I'm good now! On our way out we bumped into one of the nurses that took care of me when I was in the hospital. She was actually the nurse that admitted me originally. She hadn't seen me in awhile and thought I looked amazing. It was so good to see her and get her opinion. The biggest thing she couldn't believe is that mommy was going to put a blanket on me since she took care of me on many days where I would spike a fever of 104 for no reason. So it's always great to hear!

Tomorrow is early intervention then Syagis (the RSV vaccine that I get every month in the winter). Hopefully after this one I only have 2 more...forever!

Have a good night!
Love,
Molly