Echo weeks are tough!

I definitely don't love weeks when we have an echo. I didn't like them when I was pregnant with Molly and I don't like them now! Of course when I was pregnant she wasn't screaming like someone was killing her during them.

Molly has an echo and cardiac visit on Friday. I don't like when they're on Friday because then I stress about it all week. I try to keep busy and that's easy to do when Molly's awake but when she's asleep I'm usually working. Since it's mindless work my mind wanders and I think about it. Not that I think her echo is going to be unchanged but she stresses me out because she is sooooooo horrible. She hates being weighed, she hates the EKG and she hates the echo. Nothing calms her down. Not her DVD player, not her books, not her blanket...nothing! I just want to fast forward to Friday afternoon when it's over. Our appointment is at 9:45 in Boston which is an awesome time. Right in the middle of rush hour. We have to leave by 7:30 to make it on time. Molly doesn't get up until 8:30 so I will have to wake her which should make her even more pleasant during her appointment. Anyone want to trade places?!

We are hoping to get a few things out of this appointment. She is only on one diurectic once a day and it's a small dose so we are hoping to get rid of that. Her diapers are huge all day long so it's really not doing anything for her anymore. I had emailed her cardiologist when she was sick to see if we could hold a dose since she was dehydrated and it didn't make sense to ask her to pee when she wasw dehydrated and he said we'd probably be getting rid of it soon anyway. Another thing we are hoping to get out of this is to have her pacemaker turned down. Right now she is being paced at 121. Her heartrate can never go below that. It can always go above which she has done on many occassions but 121 is too high for a kid her age and it's been at 121 for over a year. Her cardiologist wanted to take her pacemaker out (silly man, that's our security blanket) but we'd rather turn it down and see how she does with that then if she does OK we can turn it off. We're not going to be messing around with that until the battery needs to be changed or she goes in for her LADDS procedure (intestine surgery). I don't know if he'll feel comfortable doing both things but even if we do one and then in April (when she has another echo) we'll do the other. Guess we'll find out on Friday if I make it to then!

Kerry