Monday, October 20, 2014

Long Overdue

Molly has been a busy little lady since my last post. I used to be so good at updating her blog but now that our biggest focus is her developmental needs there isn't a whole lot to update on on a regular basis.

Molly started her 2nd year of preschool last month and absolutely loves it. She never shed a tear and picked up right where she left off. Her teacher has noticed a great improvement in her social skills and speech. She is initiating more conversation, interacting with the kids and initiating play. I don't usually get to speak to her speech therapist and OT but I do get to speak to her PT (in school) and she just loves Molly. She worked with her last year and is happy to have her again this year. She said that she is one of the hardest working students that she works with and they always run out of time because she is willing to do everything this is asked of her and she has fun doing it. That makes me so happy to know that she doesn't have to drag her through her sessions. Her outpatient therapy is going well. She meets her PT goals every week and is making great progress. I'm not really sure how I'm feeling about her outpatient speech therapy. We had to say goodbye to our regular therapist. I just love her and she was so great with Molly. She showed excitement in her accomplishments and always gave me hope for future progress. I'm not getting that from the new people that she is working with but I'm hoping that will come in time.

She did have a dentist appointment and did so well. She just laid there and let the dentist do her thing. She didn't have any cavities but we were told that she will need braces when her permanent teeth come in. Her mouth is just so small and there isn't a whole lot of room in there. Ugh!

We also saw orthopedic for a follow up since discontinuing her braces. Her feet look great and they look even better since her appointment in August. They still turn in a bit but not nearly as bad as they were. He wants her to wear braces at night to bed since her arches haven't developed yet. I have been fighting to get those for over a month now!!!!!!!!

We also saw ophthalmology and that appointment went better than I expected. I thought they were going to give her a weaker prescription because her eye had over corrected but they discontinued the use of the glasses all together...for now. She is a little far sighted but it isn't anything that requires glasses right now. As she gets further along in school and starts reading she may need them but for now she doesn't need them and we are taking the good news and running with it!

Cardiology...the dreaded appointment. I don't know why I always dread it, like dread it to the point where I feel sick to my stomach, because it is always great. Everything is the same...mild regurgitation on the mitral valve and a tiny VSD. Her cardiologist is so thrilled with her. We don't have to go back until school is out and that is the longest we have ever gone in between cardiology visits. I don't like going that long because I like to know what is going on inside that little body.

Molly is really coming along. She is making huge strides with her speech. She loves to sing songs and we are thinking about signing her up for dance classes. There is a studio not far from where we live that has special needs dance classes so I'm going to call and speak to the teacher to see what she would suggest. She would love it! Last week we were in the book store and she was reading the words on the signs of the different sections...dinosaurs, animals, etc. Even when she is looking at her books she can read a fair amount of words in the books. She can also spell a decent amount of words. She is just so smart! I really don't have anyone to compare her to (and I don't want to compare her to anyone)but knowing what she has been through, where she was a year ago and what we were told to expect makes us even more proud of her.

One of the other things we are struggling with is going to new places with her. She does NOT like going anywhere she has never been before. She has anxiety, cries and wants to be carried the entire time we are there. She doesn't not like big crowds and is more content at the doctors office than something she should be enjoying. I'm not exaggerating. She has a wellness visit in December so I'm going to talk to her pediatrician about it again. We have always taken her out and have never kept her secluded (except during cold and flu season) and this is really out of no where. I'm at a loss so hopefully her dr can help us out.

Now that those appointments are behind us for now we are going to focus on Trick or Treating, the holidays and all of the other fun things we have coming up! We hope everyone is remaining happy and healthy!

Happy Halloween!!







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